Tag: data science for good

Data ScienceHistorySocial Justice

Remembering Bill Jenkins

As Chelsea Manning is again sent to jail for refusing to abandon basic press freedoms, I am reminded of Bill Jenkins.

Mr Jenkins passed away recently. He was an epidemiologist (and Morehouse graduate ) who bravely exposed the horrific Tuskegee experiments, as Ms Manning exposed egregious human rights violations that occurred during US military operations.

If you are not aware of the Tuskegee experiment, the US Health Service allowed Black men to be untreated for sexually transmitted diseases for three decades. It was a controlled experiment to determine the effects of untreated syphilis. The participants were all poor Black sharecroppers — men recruited through Tuskegee University, believing that they were getting free healthcare in exchange for helping to develop a drug to fight “bad blood”. None of those who had syphilis were given access to penicillin, even after the study supposedly ended. Many perished or suffered irreversible harm.

One outcome was the establishment of informed consent, and other ethical practices we take for granted when we walk into a doctor’s office, or signup for a clinical trial. Jenkins learned of the study, and started asking questions, despite being told to ignore it, or just “look the other way”. In the current climate, Mr Jenkins might have well faced prison. Some principles are worth suffering for, some causes are just that important.

Thank you Bill Jenkins, thank you Chelsea, and thank you to the others doing the right thing.